Clinical trials are voluntary research studies conducted in healthy volunteers or patients with the targeted disease. They are designed to answer specific questions about a drug candidate’s safety and effectiveness, and are required in order for a drug to be approved for use within the health care system.

For those looking to participate in a clinical trial, it can be hard to know where to start. As a potential patient, your research should be as thorough and comprehensive as possible. Below is a selection of resources for patients and caregivers seeking more information about clinical trials. Many of them also offer search tools to help you search for clinical trials that may be of potential interest for you.

Please note: The resources on this page are meant to be informational only and are not intended to replace medical advice. Always talk to your health care provider about any medical decisions, including how to manage your daily symptoms. InDex Pharmaceuticals is not affiliated with nor endorses any particular organization, is not responsible for the content of any sites or resources we may link to from this website, and makes no guarantees about the accuracy of the information or the quality of the support provided. (part of the U.S. National Health Institutes National Library of Medicine) A searchable database of privately and publicly funded clinical studies around the world that also includes an overview of the clinical research process, information for potential clinical study participants and a glossary of common words. (part of the Swedish Research Council) A collaboration between Sweden’s six cooperating regions financed by the Swedish Research Council, based on improving the conditions to drive clinical trials.
LIF – Information for those thinking about participating in a clinical trial This Swedish brochure is intended for patients, their relatives and friends, and those who are interested in learning more about clinical trials in Sweden. You will learn about the actors responsible for running clinical trials, what it means to participate in a clinical trial, who can participate, and the opportunities and risks for clinical trial participants.
EUPATI EUPATI, the European Patients’ Academy, is an EU project that includes a web-based training for patients in drug development.
The Center for Information and Study on Clinical Research Participation (CISCRP) A nonprofit organization dedicated to educating and informing the public, patients, medical/research communities, the media, and policy makers about clinical research and the role each party plays in the process.